To have seen my child’s back unexpectedly explode in dots as he reacted to 16 of 20 environmental allergens in his skin test just days before Christmas sent me right back to the moment three years ago when we found out that he could potentially die if he ate another peanut. A range of unexplainable emotions filled my heart as I saw my completely normal looking, happy-go-lucky, energetic little boy playing with his DS completely unaware of what was going on behind him. How I wanted to hug away all the challenges that his future holds, the heartaches that will come as he experiences teasing, bullying and being selective in those he dates, and then all the hesitations I see him forming because he’s not sure if his allergies will keep him from doing something he really wants to do, again. How I wanted to question God knowing that He can take all of this way, He can put our lives back into order and He can take this stress away. Yet, I couldn't fully question because I know He has a distinct path for my son and our family to follow, so I found a way to trustfully question.
As much as I want to have my tantrum, I have to stop and remind myself of all the blessings that have come with all of NoNut’s allergies, of all the things that his allergies have taught us and the ways that his allergies have opened our eyes to others who struggle with things they cannot change. It’s taught me that life isn’t always served on a silver platter like I’m used to--it’s all too real when it’s your own flesh and blood rather than a shared prayer request by someone in church. But, his allergies have also taught me that there are moments when all we can do is cry and it’s really okay to do that. There are moments that we will be upset. And there are moments that we don’t know how we’re going handle these new challenges, but somehow, we simply know that God is going to help us through it even if it's one day at a time.
I will never forget the Ninja Turtle moment we had this morning in our driveway. We had another situation where NoNut left his epipens in the car and they were a chunk of ice when we found them this morning. This meant that NoNut would have to help pay for the new set of epipens as a consequence. (Don’t worry, we have spare pairs scattered around the house but needed another pair for our upcoming vacation!) It pained me to have to follow through with this consequence as I know how hard he's been trying to save his money. I was soooo torn between the motherly instinct of protecting my son and being his care taker versus showing him tough love by following through with the named consequence knowing it would be another tool in helping him learn (the hard way) that he has to own his allergy.
As I counted NoNut’s Christmas money that went from his bank to my purse for the new epipens, he lowered his Ninja Turtle mask over his face to hide his emotion. Yet, the mask failed to hide tears in the corners of his eyes. As he looked at me, all I saw was this enormous green face w/a chintzy white smile yet sad little eyes filled with as much emotion as I had last week as I saw his back after the skin test.
These little eyes were filled with a weight that is much too big for any child to carry. His eyes pleaded for me not to take his money yet turned into eyes that were defeated and lost. How my heart broke and tears instantly flowed. All I could do was sink down onto the van floor and just hold my little boy and whisper reassurances to him through the tears and pray the “God, I don’t know how to do this” prayer with my arms tightly wrapped around my child, rocking him as our tears fell in unison. Though he had that tough Ninja Turtle exterior, my little boy was crumbling on the inside more than I ever knew he was.
He has been through a lot the past few months. NoNut lost a lot of security when he faced the nut situations at one of the places he never questioned, church! He’s seen the cost of being different in a place where all should be accepted. He has heard adults say things about him and to him that made him feel like it’s his fault for having allergies as if he should somehow be able to help it. He’s been accidentally offered unsafe things by people he trusted. And he’s been given more Christmas candy that he couldn’t eat and has had to say “no thank you” more times this season than he’s ever wanted to.
How do I explain to a six year old that God gave him his allergies for a purpose? How do I explain all the ways God has already used my child’s allergies for His good? How do I explain to him the dangers of letting our guard down or staying silent when we should say something? How do I let him be a normal kid when there are a couple things about him that set him apart? How do I even raise a child with 28 different allergies (food and environmental) and not cave under all the stress that comes with it? How do I advocate for my child and teach him to advocate for himself as well? How do I protect him while letting him go all at the same time? Most importantly, how do I let this little boy know that he is soooo incredibly loved and cherished, that he is a miracle and a true gift from God and that his allergies don’t change who he is regardless of what others say?
The Ninja Turtle mask can hide everything but the tears, the love, the hugs and the sweet assurances that even though we really don’t know how to walk this path, we will walk it with each other with God next to our side. Such a big burden for a little child and such heaviness for this weary mom who is overwhelmed by life’s curve balls as I see more of his test results and realize all over again the severity of his allergies. But the Ninja Turtle mask memory is such a sweet memory as mother and son connect with each other's heart and minister to each other in a way that most will never get to experience. Like all the other allergy tests and results, we will adjust and we will keep finding creative alternatives and we will trust, for that is the only thing we can do. Can't imagine living this kind of allergy life without God walking it with us!



